Percepciones y prácticas de autocuidado de niños y adolescentes con osteogénesis imperfecta
estudio cualitativo
Palabras clave:
Enfermería Pediátrica, Niño, Adolescente, Osteogénesis Imperfecta, AutocuidadoResumen
Objetivo: Comprender la percepción y las prácticas de autocuidado entre niños y adolescentes con osteogénesis imperfecta.
Método: Estudio cualitativo y descriptivo, realizado con 14 niños y adolescentes de un hospital público de referencia en Brasília, entre agosto de 2024 y junio de 2025, utilizando la Dinámica de Creatividad y Sensibilidad-Cuerpo-Saber y el análisis temático.
Resultados: El análisis temático reveló tres categorías: (1) actividades que promueven el autocuidado y la participación; (2) fracturas recurrentes y limitaciones funcionales; y (3) actividades que sustentan el autocuidado.
Consideraciones finales: Aun ante las restricciones impuestas por la enfermedad, los niños relatan estrategias de protección, manejo del dolor, adaptaciones en el entorno y organización de las actividades para reducir riesgos y preservar la autonomía y el bienestar.
Citas
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Derechos de autor 2026 Tayane de Jesus Resende, Lara Mabelle Milfont Boeckmann, Fabíola Mara Gonçalves de Siqueira Amaral, Luciene Rodrigues Barbosa, Rita de Cassia Melão de Morais
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