Physical, emotional, and social repercussions of orofacial clefts during adolescence
DOI:
https://doi.org/10.1590/ce.v30i0.100466ptKeywords:
Adolescent, Cleft Palate, Cleft Lip, Self Concept, BullyingAbstract
Objective: To understand the physical, emotional, and social repercussions of orofacial clefts in adolescents.
Method: A descriptive, exploratory, qualitative study based on the methodological framework of Oral History, conducted with 10 adolescents treated at a support association. Data collection was performed through semi-structured interviews, which were recorded and transcribed in full. The data were analyzed using content analysis, subsequently operationalized with IRaMuTeQ® software, and systematized through Similarity Analysis.
Results: From birth, adolescents face the consequences of cleft palate, including communication difficulties and challenges with self-acceptance. The support network turned out to be important in improving social interaction, since relationship difficulties begin in childhood and are exacerbated in adolescence, when bullying is common.
Final Considerations: Orofacial cleft palate has physical, emotional, and social repercussions for adolescents, which reinforces the need for social support.
References
1. de Lira MR, Lemos JVA, Almeida MAS, Alves SGG, Fernandes DC, de Melo ICF. Qualidade de vida dos indivíduos com fissura labiopalatina. Cad Grad Ciênc Biol Saúde Unit [Internet]. 2022 [cited 2023 Mar 12];7(2):87-98. Available from: https://periodicosgrupotiradentes.emnuvens.com.br/cdgsaude/article/view/8340
2. de Sousa GFT, Roncalli AG. Fatores associados ao atraso no tratamento cirúrgico primário de fissuras labiopalatinas no Brasil: uma análise multinível. Ciên Saúde Colet [Internet]. 2021 [cited 2023 Mar 12];26(2):3505-3515. Available from: https://doi.org/10.1590/1413-81232021269.2.23592019
3. Ministério da Saúde (BR). Marco legal: saúde, um direito de adolescentes. Brasília, DF: Ministério da Saúde; 2007 [cited 2025 Sep 16]. 58 p. Available from: https://bvsms.saude.gov.br/bvs/publicacoes/07_0400_M.pdf
4. Paiva IT, Carramilo-Going LC, de Lemos DIM, Alves H, Avoglia HRC. Sentindo-se diferente: a autoestima da pessoa com fissura labial e/ou palatina. Psicol Argum [Internet]. 2020 [cited 2023 Apr 2]; 38(101):580-603. Available from: http://dx.doi.org/10.7213/psicolargum.38.101.AO09
5. Santos JVN, Tavares JLF, da Silva MAB, Barbosa DN, Leite RB. Fissura labiopalatina: estudo do papel do profissional de saúde na diminuição dos danos ao paciente. Rev Ciênc Odontol [Internet]. 2020 [cited 2023 Apr 2];4(1):48-55. Available from: https://revistas.icesp.br/index.php/RCO/article/view/707
6. Lecommandeur S, Roessingh AB, Dumont L, Camenzind L, Habersaat S, Schechter DS, et al. Assessment of multiple dimensions of psychological well-being in swiss youth born with a unilateral cleft lip and palate Cleft Palate Craniofac J [Internet]. 2025 [cited 2025 Jul 11];62(2):326-36. Available from: https://doi.org/10.1177/10556656231219418
7. Branco SC. História Oral: reflexões sobre aplicações e implicações. Norus [Internet]. 2020 [cited 2023 Apr 2];8(13):8-27. Available from: https://doi.org/10.15210/norus.v8i13.18488
8. Rigolon M, Carlos DM, de Oliveira WA, Salim NR. “Health does not discuss trans bodies”: Oral History of transsexuals and transvestites. Rev Bras Enferm [Internet]. 2020 [cited 2023 Apr 15];73(6):e20190228. Available from: http://dx.doi.org/10.1590/0034-7167-2019-0228
9. de Magalhães JRF, Gomes NP, Mota RS, dos Santos RM, Pereira A, de Oliveira JF. Repercussions of family violence: Oral History of adolescents. Rev Bras Enferm [Internet]. 2020 [cited 2023 Apr 15];73(1):e2018228. Available from: https://doi.org/10.1590/0034-7167-2018-0228
10. Souza VRS, Marziale MHP, Silva GTR, Nascimento PL. Translation and validation into Brazilian Portuguese and assessment of the COREQ checklist. Acta Paul Enferm [Internet]. 2021 [cited 2023 Apr 15];34:eAPE02631. Available from: https://doi.org/10.37689/acta-ape/2021AO02631
11. de Moura CO, Silva IR, da Silva TP, Santos KA, Crespo MCA, da Silva MM. Methodological path to reach the degree of saturation in qualitative research: grounded theory. REBEN. 2022 [cited 2023 Jun 1];75(2):e20201379. Available from: https://doi.org/10.1590/0034-7167-2020-1379
12. Bardin L. Análise de conteúdo. Lisboa: Edições 70; 2020. 288 p.
13. Camargo BV, Justo AM. Tutorial para uso do software IRaMuTeQ (Interface de R pour les Analyses Multidimensionnelles de Textes et de Questionnaires). Laboratório de Psicologia Social da Comunicação e Cognição, Universidade Federal de Santa Catarina; 2016.
14. de Amaral BPA, Costa e Silva LH. Fissura Labiopalatina: revisão literária [undergraduate thesis]. Mineiros, GO: Curso de Odontologia, Faculdade Morgana PotricH; 2021 [cited 2024 Jan 20]; 37 p. Available from: https://repositorio.fampfaculdade.com.br/items/show/473
15. Osorio C, Persson M. Psychosocial issues related to speech and hearing in patients with clefts. J Craniofac Surg [Internet]. 2025 [cited 2025 Sep 13];36(3):1058-1061. Available from: https://doi.org/10.1097/SCS.0000000000010707
16.Ardouin K, Hare J, Stock NM. Emotional well-being in adults born with cleft lip and/or palate: a whole of life survey in the United Kingdom. Cleft Palate Craniofac J [Internet]. 2020 [cited 2024 Jan 20];57(7):877-885. Available from: https://doi.org/10.1177/1055665619896681
17. Oliveira Júnior AG, Montagna E, Zaia V, Barbosa CP, Bianco B. Oral health-related quality of life in patients aged 8 to 19 years with cleft lip and palate: a systematic review and meta-analysis. BMC Oral Health [Internet]. 2023 [cited 2025 Sep 16];23:670. Available from: https://doi.org/10.1186/s12903-023-03382-4
18. Ardouin K, Hotton M, Stock NM. Interpersonal relationship experiences in adults born with cleft lip and/or palate: a whole of life survey in the United Kingdom. Cleft Palate Craniofac J [Internet]. 2021 [cited 2024 Apr 14];58(11):1412-1421. Available from: https://doi.org/10.1177/1055665620987109
19. Oka A, Tanikawa C, Ohara H, Yamashiro T. relationship between stigma experience and self-perception related to facial appearance in young Japanese patients with cleft lip and/or palate. The Cleft Palate Craniofacial Journal. 2022 [cited 2025 Sep 13];60(12):1546-1555. Available from: https://doi.org/10.1177/10556656221114581
20. Gifalli M, Antonio CT, da Silva VAP, Capone FA, Prado PC, Trettene AS. Adolescents with orofacial clefts: understanding their experiences. Rev Paul Pediatr [Internet]. 2024 [cited 2025 Sep 13];42:e20233131. Available from: https://doi.org/10.1590/1984-0462/2024/42/2023131
21. Mori MM, Piran CMG, Cargnin AVE, Caetano GM, Tofalini AC, Rodrigues TFCS, et al. Multidisciplinary care for children with cleft lip and palate and their families: Family-Centered Care. Rev Gaúcha Enferm [Internet]. 2024 [cited 2025 Sep 16];45:e20230276. Available from: https://doi.org/10.1590/1983-1447.2024.20230276.en
22. Frederick R, Hogan AC, Seabolt N, Stocks RMS. An ideal multidisciplinary cleft lip and cleft palate care team. Oral Dis [Internet]. 2022 [cited 2024 Apr 14];28(5):1412-1417. Available from: https://doi.org/10.1111/odi.14213
23. Bous RM, Hazen RA, Baus I, Palomo JM, Kumar A, Valiathan M. Psychosocial adjustments among adolescents with craniofacial conditions and the influence of social factors: a multi-informant study. Cleft Palate Craniofac J [Internet]. 2020 [cited 2024 Apr 20];57(5):624-636. Available from: https://doi.org/10.1177/1055665619888308
Published
How to Cite
Issue
Section
License
Copyright (c) 2025 Geovanna Mazia Caetano, Beatriz Sousa da Fonseca, Camila Moraes Garollo Piran, Mariana Martire Mori, Marcela Demitto Furtado, Gabriel Zanin Sanguino, Maria de Fátima Garcia Lopes Merino
This work is licensed under a Creative Commons Attribution 4.0 International License.
Cogitare Enfermagem reserves the right to make normative, orthographic, and grammatical changes to the published article to maintain the cultured standard of the language, while respecting the authors' style.
The published study is the sole responsibility of the author(s), and Cogitare Enfermagem is exclusively responsible for evaluating the manuscript as a scientific publication vehicle. Revista Cogitare Enfermagem is not responsible for any violations of Law No. 9,610/1998, the Brazilian Copyright Law.
Cogitare Enfermagem allows the author to hold the copyright of articles accepted for publication, without restrictions.
The articles published are licensed under the Creative Commons license CC BY 4.0 Creative Commons - Attribution 4.0 International - CC BY 4.0 - The attribution adopted by Cogitare Enfermagem is permitted:
- Share - copy and redistribute the material in any media or format.
- Adapt - remix, transform and build upon the material for any purpose, even commercially.
- Attribution - You must give proper credit, provide a link to the license, and indicate if changes have been made. You may do this in any reasonable way, but not in a way that suggests that the licensor endorses it or approves of its use.
- No additional restrictions - You may not apply legal terms or technological measures that legally restrict others from doing something that the license allows.
