FAMILY CAREGIVER OF ALZHEIMER’S DISEASE PATIENT: LIFE EXPERIENCE AND FEELINGS REVEALED
DOI:
https://doi.org/10.5380/ce.v12i2.9821Keywords:
Anciano, Enfermedad de Alzheimer, Familia, Idoso, Doença de Alzheimer, Família, Elderly, Alzheimer’s disease, FamilyAbstract
The objective of this paper is to describe the life experience and feelings of the family caregiver of Alzheimer’s Disease
patient. This is a qualitative study with phenomenological approach. Five female family members that are the principal caregivers of
five elderly with this dementia were interviewed. Four themes describing the life experience and feelings of the participants were
revealed: The caregiver herself; Life experience with the elderly; Loneliness; Affectivity. We concluded that being the principal caregiver
of a dement elderly is a challenge, specially when she does not receive familiar or social support. Her being gets fragile and she gets
physically and emotionally stressed and has to care the patient because there is no option (facticity), but tries to do it with patience,
tolerance, love and respect. It is essential that these caregivers be understood and supported during this caring process.
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