HOME-BASED CAREGIVERS OF PEOPLE WITH INTELLECTUAL DISABILITIES IN RURAL SETTINGS AND THEIR CHALLENGES

Authors

DOI:

https://doi.org/10.5380/ce.v26i0.72567

Keywords:

Caregivers, Intellectual Disability, Nursing, Rural Population, Social Support.

Abstract

Objective: to analyze the challenges, characteristics, and feelings of home caregivers of people with intellectual disabilities in the rural context. Method: this is a quanti-qualitative study with 124 caregivers of people with intellectual disabilities living in rural settings in eight municipalities in southern Brazil. Data were collected from September/2018 to June/2019, through a questionnaire with social, demographic, and daily variables of care. The analysis was analytical and descriptive type, through frequency and frequency comparison. Results: the home caregivers are women, mothers, sisters, of advanced age, with little education, but who, in the face of challenges such as accumulation of functions, work overload, low education, fatigue, social and professional isolation, develop their attributions with love. Conclusion: the study contributed to the identification of the characteristics and challenges of caregivers of people with intellectual disabilities in rural areas, revealing issues for the advancement of public health practices.

Author Biographies

Tauana Bueno de Quadros da Silva, Universidade Federal de Santa Maria/Campus Palmeira das Missões/RS

Enfermeira, egressa da Universidade Federal de Santa Maria

Darielli Gindri Resta Fontana, Universidade Federal de Santa Maria/Campus Palmeira das Missões/RS

Professora do Departamento de Ciências da Saúde, do Curso de Enfermagem, na Universidade Federal de Santa Maria/UFSM, no Campus de Palmeira das Missões. Atuação nas Disciplinas de Saúde Coletiva.

Leonardo Bigolin Jantsch, Universidade Federal de Santa Maria/Campus Palmeira das Missões/RS

Professor do Departamento de Ciências da Saúde, do Curso de Enfermagem, na Universidade Federal de Santa Maria/UFSM, no Campus de Palmeira das Missões. Atuação nas Disciplinas de saúde da criança e pediatria, estudos quantitativos.

Isabel Cristina dos Santos Colomé, Universidade Federal de Santa Maria/Campus Palmeira das Missões/RS

Professora do Departamento de Ciências da Saúde, do Curso de Enfermagem, na Universidade Federal de Santa Maria/UFSM, no Campus de Palmeira das Missões. Atuação nas Disciplinas de Saúde Coletiva.

Marta Cocco da Costa, Universidade Federal de Santa Maria/Campus Palmeira das Missões/RS

Professora do Departamento de Ciências da Saúde, do Curso de Enfermagem, na Universidade Federal de Santa Maria/UFSM, no Campus de Palmeira das Missões. Atuação nas Disciplinas de Saúde Coletiva.

References

Downloads

Published

2021-09-21

How to Cite

Silva, T. B. de Q. da, Fontana, D. G. R., Jantsch, L. B., Colomé, I. C. dos S., & Costa, M. C. da. (2021). HOME-BASED CAREGIVERS OF PEOPLE WITH INTELLECTUAL DISABILITIES IN RURAL SETTINGS AND THEIR CHALLENGES. Cogitare Enfermagem, 26. https://doi.org/10.5380/ce.v26i0.72567

Issue

Vol. 26 (2021)

Section

Research

License

Cogitare Enfermagem reserves the right to make normative, orthographic, and grammatical changes to the published article to maintain the cultured standard of the language, while respecting the authors' style.

The published study is the sole responsibility of the author(s), and Cogitare Enfermagem is exclusively responsible for evaluating the manuscript as a scientific publication vehicle. Revista Cogitare Enfermagem is not responsible for any violations of Law No. 9,610/1998, the Brazilian Copyright Law.

Cogitare Enfermagem allows the author to hold the copyright of articles accepted for publication, without restrictions.

The articles published are licensed under the Creative Commons license CC BY 4.0 Creative Commons - Attribution 4.0 International - CC BY 4.0 - The attribution adopted by Cogitare Enfermagem is permitted:

  • Share - copy and redistribute the material in any media or format.
  • Adapt - remix, transform and build upon the material for any purpose, even commercially.
  • Attribution - You must give proper credit, provide a link to the license, and indicate if changes have been made. You may do this in any reasonable way, but not in a way that suggests that the licensor endorses it or approves of its use.
  • No additional restrictions - You may not apply legal terms or technological measures that legally restrict others from doing something that the license allows.